Children’s Hospital of Philadelphia recently gained a new $10 million ARPA-H grant, which will be used to introduce a tool to gather and share information with the goal of transforming care for children with rare diseases, writes Alison McCook for The Philadelphia Inquirer.

The tool is known as the Real-time Analysis and Discovery in Integrated And Networked Techonologies (RADIANT). It is designed to gather data from the electronic health records of patients around the country in real time. This allows researchers and clinicians to learn from each others’ experiences with rare diseases.

Adam Resnick, research scientist in the Department of Biomedical and Health Informatics and co-executive director of the Center for Data Driven Discovery in Biomedicine at CHOP, explained why.

“If you have no clinical experience with that patient, how do you make informed decisions about their care, and what potential clinical trials are out there? So this aids with that,” said Resnick.

With RADIANT, surgeons will be able to use the image they see to search the records of patients with similar MRIs, and also read about clinical trials, treatment options, and outcomes for other children with the same tumor.

Read more about CHOP’s new grant and how the new tool will help transform the health of children with rare diseases in The Philadelphia Inquirer.

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Editor’s Note: This post was originally published on PHILADELPHIA Today in October 2024.